The CCE approach - Quality of life

The 13th European Congress of Mental Health in Intellectual Disability (EAMHID) was held in Berlin from September 23- 25, 2021. The central theme was 'From Science to Practice'.
Peter Koedoot, Anouschka Jansen and Vanessa Olivier-Pijpers presented 'The CCE approach'. One of the themes of this approach is the 'Quality of life' explained by Anouschka Jansen, coordinator at CCE.

Questionnaire

People with severe multiple disabilities are unable to express what they think and feel in words. Assessing their quality of life is challenging; therefore Centre for Consultation and Expertise developed the Revised Quality of Life Questionnaire (RQoLQ). This questionnaire facilitates discussion of all aspects related to the quality of life of a person with severe multiple disabilities. The RQoLQ leads to an intersubjective conclusion via Socratic dialogue. The aim is to systematically identify all the aspects influencing a person’s quality of life. An accompanying dialogue poster provides guidance for these sessions.

From science to practice

Assessing the quality of life in people with severe multiple disabilities is a challenge. It is crucial to focus on the process and look for the factors that are most relevant to that person’s quality of life.